dennis jones on wed 20 aug 03
She's obviously a tough lady. My kind of woman !
Dennis
----- Original Message -----
From: "Stacey Beth Shulman"
To:
Sent: Wednesday, August 20, 2003 11:56 AM
Subject: Re: arthritis/eye stroke
> hi y'all-
>
> i've been reading the digests for a few weeks now, and the thread about
arthritis & eye strokes really hit home. my mom has rheumatoid arthritis.
she was taking some of the same arthritis meds 2 years ago, when she
suffered strokes behind both eyes, leaving here completely (and permanently)
blind. she still puts on make-up (she just started getting her lashes dyed
so she wouldnt have to fool with the mascara anymore!), goes to work, and
tries to live a normal life (as much as one can, when one can't see a damn
thing). she's my hero.
>
> the suckiest part of all of this is that my pottery is beginning to sell
very well, and she can't see the stuff i make. she misses going to
festivals and buying work by potters and other artists.
>
> thank you to tom for sharing this vital information that the drug
companies seem to think isnt important enough to put in large print.
>
> cheers-
> stacey.
>
> stacey beth shulman
> hand built pottery, etc...
> decatur, ga
> staceysart@aol.com
>
>
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Stacey Beth Shulman on wed 20 aug 03
hi y'all-
i've been reading the digests for a few weeks now, and the thread about arthritis & eye strokes really hit home. my mom has rheumatoid arthritis. she was taking some of the same arthritis meds 2 years ago, when she suffered strokes behind both eyes, leaving here completely (and permanently) blind. she still puts on make-up (she just started getting her lashes dyed so she wouldnt have to fool with the mascara anymore!), goes to work, and tries to live a normal life (as much as one can, when one can't see a damn thing). she's my hero.
the suckiest part of all of this is that my pottery is beginning to sell very well, and she can't see the stuff i make. she misses going to festivals and buying work by potters and other artists.
thank you to tom for sharing this vital information that the drug companies seem to think isnt important enough to put in large print.
cheers-
stacey.
stacey beth shulman
hand built pottery, etc...
decatur, ga
staceysart@aol.com
Earl Brunner on thu 21 aug 03
Janet said something to the affect that everyone is different, and no
one regimen will probably work for everyone. Janet has RA and KNOWS
what she is talking about. I have had RA for three years now. Cox 2
inhibitors did NOTHING for my RA. I am currently on a drug that is
administered by I. V. every 5 weeks and costs more for a years supply
than I make in a year. It barely mutes the RA enough to allow me to
function. And it wears off before the next batch.
This drug is one of the newest best things in the arsenal for fighting
RA. It's so new that they keep finding new side affects as they go. No
one knows what the long range affects will be, be cause no one has taken
it yet for "long range". It doesn't matter. It could kill me next week
or next year and I would continue to take it.
It's a question of quality of life. Without this drug (and Methotrexate
and a bunch of other drugs) I would be immobile and in pain like I
couldn't take). Even so, I have to remind myself all of the time what
it was like BEFORE Remicade.
Those who have found relief some other way, that's great. But often
what seems to work for one does not work for someone else for the
reasons that Janet gave. No one thing works for everybody.
----- Original Message -----
From: "Stacey Beth Shulman"
To:
Sent: Wednesday, August 20, 2003 11:56 AM
Subject: Re: arthritis/eye stroke
> hi y'all-
>
> i've been reading the digests for a few weeks now, and the thread
about
arthritis & eye strokes really hit home. my mom has rheumatoid
arthritis.
she was taking some of the same arthritis meds 2 years ago, when she
suffered strokes behind both eyes, leaving here completely (and
permanently)
blind. she still puts on make-up (she just started getting her lashes
dyed
so she wouldnt have to fool with the mascara anymore!), goes to work,
and
tries to live a normal life (as much as one can, when one can't see a
damn
thing). she's my hero.
>
> the suckiest part of all of this is that my pottery is beginning to
sell
very well, and she can't see the stuff i make. she misses going to
festivals and buying work by potters and other artists.
>
> thank you to tom for sharing this vital information that the drug
companies seem to think isnt important enough to put in large print.
>
> cheers-
> stacey.
>
> stacey beth shulman
> hand built pottery, etc...
> decatur, ga
> staceysart@aol.com
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